2011-4-21 15:48
婉╳婉
6歲血癌女童沉默望明天 「百字遺囑」感動全國 父盼籌錢換骨髓
(明報)2011年4月21日 星期四 05:06
【明報專訊】因患血癌 寫下百字「遺囑」，希望將唯一財產布娃娃贈送老師的四川 萬源市魏家鄉6歲女童趙惠平，目前在二期化療階段，還需進行骨髓移植手術，醫生稱骨髓移植後治癒率也僅20%至40%。原本活潑的小惠平，現在沉默寡言。惠平爸爸趙仕貴說，絕不放棄孩子的生命，「多活一天算一天」，但他仍為數十萬元高昂醫藥費發愁。
本報記者日前在重慶兒童醫院血液科病房見到了小惠平，這間約300呎的病房住了8名血液病患童，加上陪護的家長，顯得相當迫仄。激素和化療作用下，惠平顯得肥胖，長髮被剃光；進入二期化療後，她已經無法吃東西，每日僅靠飲一點水和輸液維生。
二期化療無法進食 輸液吊命
小惠平年初突然發燒，後被診斷患上急性高危血癌。趙仕貴說，初聽聞孩子病情和高昂醫藥費，十分絕望，曾經短暫放棄治療，但後來實在不忍心，決定繼續治療，「不管怎麼樣，能夠讓她多活一天就多活一天」。
但小惠平出人意料地寫了一封「百字遺囑」，說知道家裏經濟條件不好，如果病治不好，請把布娃娃交給班主任老師。正是這封信，感動無數讀者。惠平姑姑趙仕瓊說，「遺囑」是惠平在第二次入院後寫的，當時孩子爸爸不在，有同病房的陪護家長看到孩子寫了東西然後放在枕頭下，姑姑問惠平是什麼，她支吾地說，「我寫了封信、日記」，樣子頗難為情。
祖父生病家窮 惠平早懂事
趙仕貴說，姊姊透過手機把信的內容傳給他，「我大哭了一天。窮人孩子早當家吧，我家裏條件差一點，她比其他小孩就懂事一點。有朋友質疑，6歲小孩怎麼能寫出遺書來，我要和大家說的是，我父親前幾年一直生病，家裏要有人照顧他，我放棄打工回鄉，村裏學校離家很近，我不幹農活的時候就輔導一下孩子寫字。做化療那段時間病房人很多，醫生每天和病房內很多人談論病情，成功率多少，骨髓移植又要多少錢，加上我們情緒也低落，她都看得出來」。
傳媒報道惠平的故事後，趙家已收到各地熱心人士捐助的26萬元（人民幣•下同），但距離骨髓移植需要的40至50萬元還有很大差距。趙仕貴一家務農，種地加養豬年收入僅8000元，國家針對血癌病童的醫保，尚未涵蓋惠平所在地區。趙仕貴說，除經濟條件外，他現在很擔心骨髓移植配型能否很快找到，亦渴望能帶女兒到醫療條件更好的北京 、上海 治療。
至於孩子的未來，他不敢奢望太多，「只希望她以後生活上能自理，能平平淡淡過一輩子我就滿足了」。四川新聞網報道，前日，趙仕貴收到香港「關懷行動」的短訊，稱可安排惠平在四川或到香港治病，並負責醫療費用。對香港讀者的關心，趙仕貴亦十分感激，他說，「從電視上看到香港是一座美麗的城市，這也是我們人生的一個嚮往」。
明報記者 王艷喆 重慶報道
2011-6-25 09:48
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